Track your HS symptoms
HS can change over time, and it can be difficult to remember everything that happened between appointments. This tracker can help you keep a simple record of what you notice and prepare questions for a healthcare professional.
You do not need to track everything, and there is no “right” way to complete it. Record only what feels useful to you.
This tool does not diagnose hidradenitis suppurativa, determine disease severity or replace medical advice.
Why keep a symptom record?
A condition that comes and goes creates a basic memory problem: sitting in an appointment, you may need to summarise weeks or months of experiences on the spot. A simple record can help you:
- remember when a flare started and how long it lasted;
- notice which body areas have been affected over time;
- describe how symptoms have been affecting your everyday life;
- save the questions you want to ask before you forget them.
You do not need to track everything. A few consistent notes may be more useful than trying to create a perfect record.
Start a new entry
Each entry walks you through four short steps:
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When?
Choose the date you are recording — today or a day you want to catch up on.
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What are you noticing?
Record symptoms with plain-language options, and describe anything else in your own words.
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Where and how much is it affecting you?
Pick affected body areas from a simple list and note how much it is affecting your day.
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What do you want to remember?
Note treatments or care you used, and save questions you want to ask at your next appointment.
A free account keeps your entries private to you — starting your first entry takes you to registration if you are not signed in.
Review your entries
Every entry is saved to your personal history. You can look back over recent days, edit or delete entries at any time, and see week and month overviews of what you recorded.
Prepare for your next appointment
When an appointment is coming up, open your summary: a neutral overview of the period you tracked — the areas you recorded, the impact on your day and the questions you saved. You can print it or download it as a PDF and bring it with you.
Helpful next steps
How your information is handled
- What is collected: only what you choose to enter in the tracker, plus the email address of your account.
- Where it is stored: your entries are sent to and stored in a database in the European Union, linked to your tracker account — they are not stored only on your device.
- How it is used: solely to show the tracker to you. Your entries are never used for advertising or profiling, and they are not shared with third parties beyond the hosting providers listed in the privacy policy.
- Analytics: analytics run only after you consent via the cookie banner, and they never receive the content of your entries — no symptoms, scores, body areas or notes.
- Deletion and export: you can export all of your data as a JSON file at any time and delete your account in the settings. Deleting your account removes all symptom entries immediately; the account record itself is permanently erased after a 30-day grace period.
Frequently asked questions
Can this tracker diagnose HS?
No. The tracker only stores what you choose to record. It does not analyse or interpret your entries, and it cannot tell you whether your symptoms are caused by hidradenitis suppurativa. Only a healthcare professional can make a diagnosis.
Does the tracker measure how severe my HS is?
No. The scales in the tracker describe your own experience in your own terms. They are not a clinical disease-severity score, and the summary does not calculate one.
Do I need to track every day?
No. Track as often as feels useful to you. Even occasional entries can make it easier to remember what happened between appointments.
Can I show my summary to a healthcare professional?
Yes. The summary is a neutral overview of the information you recorded yourself and is designed to support — not replace — the conversation with your doctor. You can print it or save it as a PDF.
This tool does not diagnose hidradenitis suppurativa, determine disease severity or replace medical advice.