Understand treatment
Explore the options and collect questions for your treatment conversation.
Explore treatment options
For people with HS & their supporters
Acne Inversa raises a lot of questions. Find information, practical support and tools for everyday life with hidradenitis suppurativa (HS).
Independent. Free to use.
01 / Information
What do the symptoms mean? What happens after a diagnosis? Start with the basics.
02 / Symptom tracker
How are you feeling today? Keep a record of symptoms and notes. You can start without an account.
03 / Finding care
Find care providers with documented HS services and details to help you get in touch.
04 / Appointments
Whether you are explaining recurring symptoms for the first time or already tracking HS, prepare the right summary for your appointment.
Organise where the problem happens, how often it returns, what it has been called before and what treatment you have already had.
Prepare my first appointmentTurn observations and saved questions from this browser into a summary for your next appointment.
Create my tracker summary05 / Everyday life
Work, travel, pain or a new flare: find practical tools for the situation you are in.
Record observations, collect questions and take a summary to your appointment. No account needed, in this browser.
Explore the options and collect questions for your treatment conversation.
Explore treatment optionsRead lived experiences, explore community questions or find a peer-support space where you can connect with other people living with HS.
Patient stories Community questions Find peer supportExplore HS research and look for clinical studies in the trial finder.
Find clinical studiesGerman studies report HS in 0.03%, 0.3% or 1.16% of people. They measured different things. What each study found, why the figures differ, and what can reasonably be concluded.
Read articleA patient-friendly overview of new PubMed publications on hidradenitis suppurativa (acne inversa) — with sources, clear limitations, and no medical advice.
Read articleAAD and the HS Foundation are developing a new joint hidradenitis suppurativa guideline to replace the 2019 North American guidance. Here is what is actually confirmed about its status, and what has already changed in HS treatment since 2019 — without overstating details that aren't yet public.
Read article