Patient stories
Personal HS and Acne Inversa experiences from patients, editorially reviewed and framed with a medical disclaimer.
If you live with HS or Acne Inversa, you can submit your story in a structured way. Publication only happens after editorial review.
Filter by diagnosis stage, treatment, daily life, body location, or topic. You can combine several filters.
Common starting points — one tap opens matching stories.
4 stories
Example Years of recurring lumps under the arms were dismissed as boils before a dermatologist named it. What the first year after diagnosis actually felt like.
Example After years of antibiotic courses that helped less and less, a conversation about biologics. What the decision and the waiting felt like — one person's view.
Example A realistic, unglamorous account of the weeks after surgery for recurrent HS — wound care, patience, and what made the recovery more manageable.
Example How everyday routines shifted through pregnancy and early parenting with HS — clothing, movement, and asking for help — from one person's perspective.
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