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My Work-Impact Record

Record what was difficult on individual working days, choose the questions you want to raise, and turn both into a summary you can take with you.

Record a working day

Record concrete situations rather than trying to judge how “severe” your condition is. Every field is optional except the date.

Workday, shift or activity

For example “early shift” or “on-site visits” — no names of other people.

HS-related effects

What was present on this working day? Select as many as apply.

Functional impact

What became harder or impossible?

Response or workaround

What did you do? These entries later show what you already solved yourself.

Your own note

Only details you may want to see in your summary later. Please avoid names of colleagues or customers.

Saved entries

    No entries yet. One entry is enough to generate a summary.

    Questions for your healthcare professional

    A healthcare professional may need concrete examples to understand how symptoms affect your work. Select the questions that are relevant to you — they appear in your summary.

    Questions for your healthcare professional

    This site does not answer any of these questions for your individual case. It only collects them so you do not forget them in the appointment.

    Prepare a workplace conversation

    First the question of how open you want to be. A draft follows that you can edit completely — or, for one option, no draft at all.

    How much do you want to say?

    You control what health information you disclose. This toolkit does not decide whether disclosure is appropriate in your individual situation, and does not recommend any of the four levels.

    The shape of the conversation

    Your answers feed into the draft and stay in the summary as conversation notes.

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    Your draft

    The draft is a suggestion to edit. You fill in the square-bracket placeholders yourself — the toolkit does not guess what belongs there.

    Returning after surgery or a longer absence

    Collect what is still open before you return. For each point, note only what you want to raise.

    Do not use this section to decide when you are medically ready to return. Follow the advice and documentation provided by your treating healthcare professionals.

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    The output is a question list, not a return-to-work clearance.

    My work-impact summary

    The summary counts only what you entered. It contains no assessment, no score and no percentage.

    Once you record a working day or select some questions, your summary appears here.

    This document contains information entered by the user. It is not a medical report, certificate, legal assessment or determination of fitness for work.

    Take your summary with you

    Go to the support overview

    Evidence and editorial review

    Last editorially reviewed: · Next review:

    Statements about working with hidradenitis suppurativa draw on published research; everything about German procedures comes from the responsible official bodies and is linked below.

    Legal conditions change. We reproduce them here for orientation only and point to the responsible authority for the binding version. The external links are checked quarterly.

    Our editorial policy

    My HS Home See this record alongside every other tool you've saved, in one dashboard — no account needed. Symptom Tracker Record how the disease itself develops over time — medical, not work-related. My HS Care Team Who may be involved, what each appointment is for and how to prepare. HS Wound Care & Dressing Guide Scenario-based education on drainage and dressing changes — including away from home. HS Clothing & Friction Guide Why workwear causes more trouble at some body sites than others. Treatment Consultation Guide Collect questions for your next dermatology appointment. Living With Acne Inversa The overview article on everyday life with HS.

    Sources

    1. Schneider-Burrus S. et al. The impact of hidradenitis suppurativa on professional life British Journal of Dermatology, 2023 — German multicentre study of work ability and productivity in HS.
    2. Federal Anti-Discrimination Agency: disability and chronic illness Official information on when a chronic illness may be treated in law like a disability in working life.
    3. gesund.bund.de: rights of people with severe disabilities The federal health portal on degree of disability, severe disability status and the application route.
    4. Federal Employment Agency: Gleichstellung Purpose and basic conditions of equal status with severely disabled people.
    5. BMAS: occupational integration management The Federal Ministry of Labour and Social Affairs on the BEM process under § 167(2) SGB IX.
    6. gesund.bund.de: phased return to work Official description of a phased return to work after a longer period of incapacity.
    7. Supplementary Independent Participation Counselling (EUTB) A nationwide network of free, independent counselling services funded by the BMAS.