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During pregnancy

Living with HS During Pregnancy

The course differs from person to person and cannot be predicted. What can be prepared is how you handle it — and how your care is organised.

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There is more data on how HS behaves during pregnancy than on any other topic in this hub — and still no answer for the individual case. That is not an evasion; it is the honest state of the evidence.

This article describes what is known from studies, what changes in daily life, and how care can be organised so that HS does not fall through the cracks during a pregnancy.

In short

  • Improvement, worsening and an unchanged course all occur — prediction is not possible.
  • Flares after birth are common and consistently reported across several studies.
  • Many people receive no dermatology care while pregnant; that can be actively changed.
  • If the groin or genital area is involved, that belongs in birth planning early.

How much the course varies

Moderate evidence Backed by consistent observational studies or smaller trials.

A systematic review with meta-analysis pooled data from several studies. The result: about a quarter of people reported improvement during pregnancy and about a fifth reported worsening — meaning the majority had an unchanged or worse course.

These figures describe groups. They say nothing about what will happen to a particular person, and they should be read neither as reassurance nor as a warning. Older ideas that HS "usually" improves in pregnancy do not hold up against the data.

What changes physically

Limited evidence Rests mainly on case series, preliminary studies, or expert consensus.

Regardless of how inflammatory activity develops, pregnancy changes the mechanical conditions at exactly the sites where HS occurs:

  • Skin folds change: abdomen, groin and the area under the breasts rest against each other differently than before.
  • Sweating increases for many people, and moist skin is mechanically more fragile.
  • Clothing that used to fit now presses or rubs in new places.
  • Dressings sit differently and shift more easily as body shape changes.
  • Movement patterns and sitting postures change, which moves pressure points around.

Self-management in daily life

Limited evidence Rests mainly on case series, preliminary studies, or expert consensus.

Practical skin care, wound care and clothing are no different in pregnancy than at other times — they are simply more pressing, because the conditions change. Detailed, product-neutral guides are available on this site.

Two points are pregnancy-specific and worth raising: first, ask before applying or taking anything, including products available without a prescription. Second, capacity changes during pregnancy; what works in daily life and what does not will shift.

Preparing appointments and securing care

Moderate evidence Backed by consistent observational studies or smaller trials.

A large cohort study found that most people received no HS-directed treatment and no dermatology care during pregnancy — even though worsening was common. The authors explicitly call for closer collaboration between dermatology and obstetrics.

For you this means: assume you will have to put the topic on the agenda yourself — in antenatal care as much as in the skin clinic. Many obstetric teams have never seen HS; a short, factual explanation from you helps more than expecting it to be familiar.

  • Say early in antenatal care that you have HS, and where you are affected.
  • Ask who your contact is during a flare and how you can get an appointment at short notice.
  • Ask for findings to be shared between the clinics involved.
  • If the groin or genital area is involved: raise it early in birth planning. How a birth is planned is decided solely by your obstetric team, with you.
  • Bring a short written note to appointments instead of relying on remembering in the moment.

Mental wellbeing

Moderate evidence Backed by consistent observational studies or smaller trials.

HS is associated with depression and anxiety, and pregnancy is a period of heightened vulnerability independently of that. Pain, exhaustion, a changing body image and the fear of not coping all meet here.

This is not a side issue and not a sign of weakness. Antenatal care has established routes to psychosocial support; you are allowed to ask for them, even when nobody offers.

The period after birth

Moderate evidence Backed by consistent observational studies or smaller trials.

The period after birth is the best-documented risk window in this article. In the cohort study, HS worsened after delivery in around two thirds of pregnancies; the meta-analysis reports a postpartum flare in over half of those studied.

This is exactly the phase in which there is least time for your own health. That is why it is worth clarifying before the birth who is responsible afterwards, and how an appointment happens when something becomes acute.

Questions to discuss with your healthcare team

These are prompts, not advice. Take the ones that fit your situation to your next appointment — the printable checklist collects them all.

  • Who looks after my HS during the pregnancy?
  • How do I get an appointment at short notice during a flare?
  • What can I use for wound care and skin care while pregnant?
  • What should my obstetric team know about my HS?
  • Is my groin or genital area involved enough to matter for birth planning?
  • What should I watch for in the weeks after birth?
  • Where can I get psychosocial support if this is weighing on me?

Questions to Ask Before Pregnancy →

Frequently asked questions

Does HS improve during pregnancy?

For some people yes, for others no. In a meta-analysis about a quarter reported improvement and about a fifth reported worsening; the majority had an unchanged or worse course. Prediction for an individual is not possible.

Is a flare after birth normal?

Commonly, yes. Several studies consistently report worsening in the postpartum period — in one cohort study, in around two thirds of pregnancies. That is a good reason to arrange care for this period in advance.

Does HS affect how my baby is delivered?

If the groin or genital area is involved, that can matter for birth planning. How the plan is made is decided solely by your obstetric team together with you — which is why it is worth raising early rather than shortly before the birth.

Does my HS harm my baby?

HS is not contagious and affects the skin, not the unborn child directly. Population-level studies report certain pregnancy complications more often in HS, and these overlap heavily with co-occurring conditions; nothing about an individual case follows from them. What applies in your situation is for your care team to interpret.

Continue in this hub

Scientific research and editorial review

Last editorially reviewed: · Next scheduled review:

Reproductive health in HS is an area where patient need clearly outruns the evidence. The disease course during pregnancy has been described in cohort studies and pooled in a meta-analysis; fertility and breastfeeding have barely been studied at all. Every page in this hub therefore carries an evidence grade, and sections state explicitly where the evidence stops.

Population-level findings about pregnancy outcomes are reported here as associations that overlap with co-occurring conditions — they are presented as a reason for coordinated care, never as a prediction about any individual pregnancy.

No page in this hub names an individual medicine or states whether a treatment is suitable during pregnancy or breastfeeding. Those questions are routed back to the clinicians who prescribe your care, because they are the only people who can weigh them for your situation.

This hub is source-linked and reviewed at least once a year. If a cited guideline, review or study changes, these pages are updated.

How we work: Editorial Policy

Sources

  1. Adelekun AA, Villa NM, Hsiao JL, Micheletti RG. Pregnancy in Hidradenitis Suppurativa — Patient Perspectives and Practice Gaps JAMA Dermatology, 2021;157(2):227–230 — survey of counselling gaps on conception, heritability, medicines and sexual health
  2. Seivright JR et al. Impact of Pregnancy on Hidradenitis Suppurativa Disease Course: A Systematic Review and Meta-Analysis Dermatology, 2022;238(2):260–266 — pooled rates of improvement, worsening and postpartum flares
  3. Lyons AB et al. Evaluation of Hidradenitis Suppurativa Disease Course During Pregnancy and Postpartum JAMA Dermatology, 2020;156(6):681–685 — cohort study; frequent postpartum worsening alongside little dermatology care
  4. Fitzpatrick L, Hsiao J, Tannenbaum R, Strunk A, Garg A. Adverse pregnancy and maternal outcomes in women with hidradenitis suppurativa Journal of the American Academy of Dermatology, 2022;86(1):46–54 — population-level analysis; associations overlap with co-occurring conditions
  5. Barnes LA, Rinderknecht FB, Hsiao JL, Naik HB. Global barriers to sexual health, pregnancy, and breastfeeding in hidradenitis suppurativa International Journal of Women's Dermatology, 2026 — international survey of barriers to sexual health, pregnancy and breastfeeding care
  6. Özbek Ç et al. Hidradenitis Suppurativa Treatment During Pregnancy and Lactation: Navigating Challenges International Journal of Dermatology, 2025 — review of care during pregnancy and lactation
  7. Collier EK et al. Pregnancy and breastfeeding in hidradenitis suppurativa: A review of medication safety Dermatologic Therapy, 2021;34(2):e14674 — a review written for clinicians; a basis for medical judgement, not for self-directed decisions
  8. MedlinePlus Genetics (U.S. National Library of Medicine): Hidradenitis suppurativa Patient information on genetics; roughly 30 to 40 per cent of affected people have at least one other affected family member
  9. European S2k guideline for hidradenitis suppurativa / acne inversa, part 2: treatment Journal of the European Academy of Dermatology and Venereology, 2025 — framing of treatment and self-management